More Summer Fun!

Here are some video's of us in the pool.

In this one he is jumping off the diving board at Grandma and Papa's house. I can't believe the progress this kid has made. We are so proud of him. I forgot to change memory cards in the camera, so we didn't have much room to record all his tricks. We will get more later.

Here he is on a jet ski that they bought 3 years ago. Papa took it out of the package today so he could try it. He kept calling it his motorcycle at first, but in the end learned it was a jet ski. Now when we go to Laughlin he is going to think he can ride by himself! Oh no!

Now for the not so fun Summer stuff we did.........More Dr. visit's and testing
How cute is this kid? He was such a trooper through the whole thing. I decided to have him tested for Celiac Disease since I have it and it's genetic. I figured, the sooner we know, the sooner we can treat it to prevent the long term effects. Well, little did I know what we were getting into. They did a blood test which showed positive but they then wanted to do an upper endoscopy to "confirm" the diagnosis. I didn't want to do that until the Dr-who by the way I absolutely LOVE-explained to me that he could have another condition called Eosinophilic Esophagitis (try saying that 3 times fast) or EE for short. What is that exactly? I pulled this from the wesite:
""What is EE?
Eosinophilic esophagitis (EE) is an allergic inflammatory disease characterized by elevated eosinophils in the esophagus EE is a newly recognized disease that over the past decade has been increasingly diagnosed in children and adults. This increase is thought to reflect an increase in diagnosis as well as a true increase in EE cases. Fortunately, the medical community is responding and new scientific information is emerging to guide management of this disorder, which often persists with ongoing or recurrent symptoms.
Eosinophilic esophagitis is characterized by a large number of eosinophils and inflammation in the esophagus (the tube connecting the mouth to the stomach). These eosinophils persist despite treatment with acid blocking medicines. People with EE commonly have other allergic diseases such as rhinitis, asthma, and/or eczema. EE affects people of all ages and ethnic backgrounds. Males are more commonly affected than females. In certain families, there may be an inherited (genetic) tendency.
In individuals with EE, the eosinophils cause injury to the tissue in the esophagus. EE can be driven by food allergy or intolerance: most patients who eliminate food proteins from their diet (by drinking only an amino-acid based formula) improve.""--scary huh?

It's rare for a person to have both conditions, but in the Dr's 20 years of practicing pediatric gastroenterology, she has seen it 4-5 times. So, we had the endoscopy done. It was the saddest day.
Here are a couple of pics while we were waiting for them to take us into the procedure room. He took Bunny along for moral support. They also had a basket of beanie babies that he got to pick one to take in the room with him and then home. He picked a penquin and calls him "Birdie" The first Gastroenterologist we met with was with Banner Pediatrics. I did not like her. She didn't seem to like Hayden let alone me. I couldn't understand a word she was saying to me and I thought she was very rude. So, my good friend Shelly told me that Phx Children's had an east valley location and they were good. I called them and they were booked out like 8 weeks, but had an opening the next day in Phoenix. I took it. We went and me the Dr and oh my! She is absolutly adorable and Hayden loves her. I felt so much better about her and she only works out of the Phx location, but is well worth the drive 4 times a year. Okay, so anyway, back to the day of the test-I got a little side tracted there. The procedure went well, he was only under about 8 minutes but woke up just as mad as could be. He cried and cried. I felt so bad. He fell asleep when we got home and slept for 4 hours! A few days later Dr. Ingebo called me with the best news ever-I'm being sarcastic. He has BOTH conditions. What luck huh? So we started with the Six Food Elimination Diet:
Empiric Six-food elimination diet is another type of elimination diet that has shown success in some EE patients. Instead of basing dietary elimination on skin testing, patients eliminate 6 common allergenic foods (milk, eggs, wheat, soy, peanuts/other nuts, fish/shellfish) regardless of the results of the allergy testing.
So, the eggs, nuts and fish we were off anyway because of the testing last year. The wheat is gluten so we were off that as well. But Dairy and Soy? Are you kidding me? What can the kid eat? Chicken, turkey, fruits, vegtables, potatoes and rice. That's about it. Not a problem becasue he likes all those things-not so much the veggies, but we're working on it. Here's the problem, he would not drink the supplemental drinks to replace the missing nutrients. They were really gross, I tried them. So, we decided to go the medication route for now.
Medications
Medications for EE most commonly include steroids to control inflammation and suppress the eosinophils. Steroids can be taken orally or topically (swallowed asthma medicine). For many patients, swallowed topical corticosteroids (fluticasone, budesonide) have led to EE remission (improvement while on treatment), though their long-term use for maintenance treatment has not been studied.
We have been doing that for about a week now and he seems to be coughing a whole lot less and sleeping better. It's so sad and hard, but he is such a good kid about everything. I hope that as he gets older we can go back to the food diet. I don't like taking medication for a long time. It just seems like it only masks the problem and doesn't treat it in this case. We'll just have to see.
He's so cute about his Gluten Free diet. Everytime he goes to eat something he says "does it have gluten fowee?" I love this little guy so much.

So there are some more things we did this summer. There is still more to come. I don't want to post it all together cause it would really take a long time and it's time to put Hayden to bed.

My next post title will be either "Welcome Baby Ethan", or "The things Shilo leaves behind". I haven't decided which one to do yet. Tune in tomorrow, or the next day whenever I get around to it. Bye for now!!

Thank You! Thank You! Thank You!!!

This post is dedicated to my wonderful cousin Jeffrey. He is the computer man in the family and I am so lucky I live on his side of town. As I have said many times my computer has been acting up and Court would try to fix it and I would try to fix it(with the help of Jeff on the phone) and nothing was doing the trick. Jeff took it home last week and got it up and running like new. I am so so so so so so so so so happy to have a working computer again!!
Thanks Jeff-Your the BEST!!!!

I have so much to post to get caught up but I will have to do that another day. Oh yeah, I got a new camera also! More on that later. Good Night!!